tag:blogger.com,1999:blog-13578815.post602113232598204751..comments2024-02-01T08:19:19.092+00:00Comments on Scraps and Threadtales: MS Awareness Day 4...winner 1 and another finishYankeeQuilterhttp://www.blogger.com/profile/03324287185970922332noreply@blogger.comBlogger21125tag:blogger.com,1999:blog-13578815.post-12844283671834633722009-03-14T08:29:00.000+00:002009-03-14T08:29:00.000+00:00It's been really interesting to read about MS this...It's been really interesting to read about MS this week...some of the coping suggestions are the same for Fibromyalgia...everything in moderation and watching that you don't over do it...and I can definitely identify with the new manual for the body analogy!Sew Create It - Janehttps://www.blogger.com/profile/11042708937494415876noreply@blogger.comtag:blogger.com,1999:blog-13578815.post-50995558850147527912009-03-12T21:57:00.000+00:002009-03-12T21:57:00.000+00:00I use a lot of decorative boxes as storage for cra...I use a lot of decorative boxes as storage for craft items. My rationale is they at least look nice stacked up even though I sometimes have to dig, of course, to the bottom one to find whatever it is I'm after.<BR/>I second the comment on the Martelli rotary cutter. It makes rotary cutting so much easier on the hands/wrists. <BR/>The other tool I would not want to be without is the Gypsy Gripper. I have strength issues in my hands which makes it almost impossible for me to hold a ruler steady. The Gypsy Gripper solves that and keeps my hand/fingers out of the way of the rotary cutter.Cathihttps://www.blogger.com/profile/02531639422553980153noreply@blogger.comtag:blogger.com,1999:blog-13578815.post-4212284488073535612009-03-12T20:59:00.000+00:002009-03-12T20:59:00.000+00:00I went on a week long trip to Boston when I was fr...I went on a week long trip to Boston when I was fresh out of high school with a woman who had been recently diagnosed with MS. The hardest thing that trip was her depth perception was non-existent. Traveling with her made me realize how NONaccessible most places are - curbs up to your knees, no alternatives to stairs, too-steep stairs on the bus/subway.<BR/><BR/>When I arrived on my college campus, I found myself analyzing everything for how this lady would ever get around - she wouldn't be able to.Katie Z.https://www.blogger.com/profile/15747099863417435647noreply@blogger.comtag:blogger.com,1999:blog-13578815.post-27284136092774627912009-03-12T19:22:00.000+00:002009-03-12T19:22:00.000+00:00I haven't read through all the comments so don...I haven't read through all the comments so don't know if anyone has mentioned these 2 things. One is a product & the other is a technique. I have neck & shoulder pain from a car accident 10 years ago. These 2 things are a help.<BR/><BR/>The first is the Martelli Rotary Cutter. You use it with a natural hand position that cuts down on fatigue and stress.<BR/>http://www.martellinotions.com/includes/product_descriptionsergocutter.html<BR/><BR/>The second thing is for hand quilting (which may not be your thing *smile*), but the Thimblelady's hand quilting technique puts less stress on the body.<BR/>http://www.thimblelady.com.au/pages/Hand-Quilting-thimbles--demos-.html<BR/><BR/>~ErinAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-13578815.post-26160752531981848702009-03-12T16:30:00.000+00:002009-03-12T16:30:00.000+00:00I have been very interested in this because my 20 ...I have been very interested in this because my 20 something stepdaughter was diagnosed with MS a couple of years ago,shortly after having her first child. I want to understand it and what she goes through. And I am a big reader of quilting blogs!lesthookhttps://www.blogger.com/profile/16693690972245313359noreply@blogger.comtag:blogger.com,1999:blog-13578815.post-2359897494774807632009-03-12T16:23:00.000+00:002009-03-12T16:23:00.000+00:00MS fatigue is, indeed, one of the worst symptoms t...MS fatigue is, indeed, one of the worst symptoms to manage. I call it "hitting the wall" because there's no way around it other than dropping everything to sleep. I've slept on the floor in the middle of a pile of laundry I was folding. I've slept in the car when it was parked in the garage, because I was too exhausted to go in the house. No suggestions other than to give into it rather than fight what your body so desparately needs...REST.Dianehttps://www.blogger.com/profile/09035433796631359696noreply@blogger.comtag:blogger.com,1999:blog-13578815.post-52248744397539803772009-03-12T13:35:00.000+00:002009-03-12T13:35:00.000+00:00I just found your blog through a google search for...I just found your blog through a google search for the Virginia star pattern...I guess it's somewhere on your site. I just wanted to say that my mother in law also has MS and loves to quilt!! She has great organization skills so she keeps everything in her "decompression chamber" (quilt room) very neat. I know that when the fatigue hits she can't sew or do anything really. But luckily her symptoms have been staying at bay for a while now! lovely siteRachelhttps://www.blogger.com/profile/13394967015021716717noreply@blogger.comtag:blogger.com,1999:blog-13578815.post-59246213668781805942009-03-12T12:36:00.000+00:002009-03-12T12:36:00.000+00:00I'm glad you've learned to stop pushing so hard, a...I'm glad you've learned to stop pushing so hard, and even trained DH. Woohoo! Hope you can keep sis from throwing out your scraps and good luck getting the frame set up.Tonya Ricuccihttps://www.blogger.com/profile/10778059489713831067noreply@blogger.comtag:blogger.com,1999:blog-13578815.post-87596372469229981152009-03-12T11:37:00.000+00:002009-03-12T11:37:00.000+00:00I love the quilt and your gifts are really awesome...I love the quilt and your gifts are really awesome.<BR/><BR/>So sorry about MS, I really don't know anyone personally with it so it very informative to read your blog (which I check daily, I like it so much).Nana Timehttps://www.blogger.com/profile/01560496536369749342noreply@blogger.comtag:blogger.com,1999:blog-13578815.post-55499791058601709242009-03-12T11:01:00.000+00:002009-03-12T11:01:00.000+00:00Lucky Elaine.I can't believe you've got stuff stor...Lucky Elaine.<BR/><BR/>I can't believe you've got stuff stored in the glove box! I only do that if I've bought something I shouldn't have and it has to remain hidden until it can be smuggled into the house. My secret purchases are usually DMC floss which can be easily hidden.<BR/><BR/>Have you read that Cathi at Celtic Knots has just been diagnosed with MS?Clarehttps://www.blogger.com/profile/09344963200919601488noreply@blogger.comtag:blogger.com,1999:blog-13578815.post-17854294364610881252009-03-12T06:14:00.000+00:002009-03-12T06:14:00.000+00:00Congratulations to Elaine - she is a lovely lady a...Congratulations to Elaine - she is a lovely lady as well as a lucky winner - I enjoy going to her quilt blog too.<BR/><BR/>So Siobhan do you have ways that you combat fatigue? IS it mostly that you try and pace yourself or are their other tricks? <BR/><BR/>I would think trying to do things that reduce stress would be helpful - soothing music, warm baths, drinking a cool drink or warm ( depending on the season) would make each day more relaxing. Does Massage therapy or acupuncture or meditating help to keep stress at bay?<BR/><BR/>Thanks again for sharing your knowledge and reflections of living with MS.<BR/>It is much appreciated.<BR/>Regards,<BR/>Annaquiltmom annahttps://www.blogger.com/profile/01976120921532056369noreply@blogger.comtag:blogger.com,1999:blog-13578815.post-86134942062954188752009-03-12T04:51:00.000+00:002009-03-12T04:51:00.000+00:00Congrads to Elaine!! I'm am soooglad you are gett...Congrads to Elaine!! I'm am sooo<BR/>glad you are getting a design wall<BR/>put up...yeah!! AND another finish....I have forgotten what those words mean.....<BR/>I have been learning so much from you this week...thanks again for sharing!Browndirtcottagehttps://www.blogger.com/profile/12259939643695340109noreply@blogger.comtag:blogger.com,1999:blog-13578815.post-14032983277526159732009-03-12T04:38:00.000+00:002009-03-12T04:38:00.000+00:00You are so fun-ny! That is really creative storage...You are so fun-ny! That is really creative storage for your quilty stuff. I could never come close to that kind of creativity. ummm...after she was gone, we discovered that my Mom kept her store of chocolate bars in her lingerie drawer...Does that count? lolLindahhttps://www.blogger.com/profile/08450792092084530798noreply@blogger.comtag:blogger.com,1999:blog-13578815.post-14743438232119830412009-03-12T02:02:00.001+00:002009-03-12T02:02:00.001+00:00I'm so jealous of Elaine after seeing what she is ...I'm so jealous of Elaine after seeing what she is getting!<BR/><BR/>Thanks for mentioning the "F" word. Fatigue is my biggest problem. Cooking and cleaning are big energy suckers for me, so a few years ago I finally got someone to come in to clean the house once a month. As for cooking, I love salad bars. Also, ask my friends, like VickiW and Tammy, how often I manage to park myself under their dinner tables!KimPhttps://www.blogger.com/profile/11713499438047823595noreply@blogger.comtag:blogger.com,1999:blog-13578815.post-33668063558400973902009-03-12T02:02:00.000+00:002009-03-12T02:02:00.000+00:00Congrats to Elaine . Your posts have made me count...Congrats to Elaine . Your posts have made me count my blessings and good health is right at the top.Joycehttps://www.blogger.com/profile/17083924435653058457noreply@blogger.comtag:blogger.com,1999:blog-13578815.post-43335330683146768572009-03-12T01:58:00.000+00:002009-03-12T01:58:00.000+00:00Oh Happy Happy Day!!! And winning this is pulling...Oh Happy Happy Day!!! And winning this is pulling me out of my dumpy mood - what amazing timing! And I also have areceived an award to boot from across the ocean! 8-)) Springy fabrics and MORE! 8-)))<BR/><BR/>I'm gonna make it to spring after all! <BR/><BR/>Thank you bunches!Elaine Adairhttps://www.blogger.com/profile/14664504842156046995noreply@blogger.comtag:blogger.com,1999:blog-13578815.post-68751241937665527432009-03-12T01:05:00.000+00:002009-03-12T01:05:00.000+00:00Yeah man, fatigue is it here, too. Fatigue and we...Yeah man, fatigue is it here, too. Fatigue and well, walking. Can't forget that. Sheesh Karen. <BR/><BR/>Grace frame - bonus. This will be great.*karendianne.https://www.blogger.com/profile/15557033346962825857noreply@blogger.comtag:blogger.com,1999:blog-13578815.post-66238006417411385352009-03-12T00:05:00.000+00:002009-03-12T00:05:00.000+00:00Really Really cute quilt - and great info about MS...Really Really cute quilt - and great info about MS - always good to know these things.JoAnn ( Scene Through My Eyes)https://www.blogger.com/profile/12621061028973446378noreply@blogger.comtag:blogger.com,1999:blog-13578815.post-17421606455896485732009-03-11T22:14:00.000+00:002009-03-11T22:14:00.000+00:00sometimes I think we all need to recognize the war...sometimes I think we all need to recognize the warning signs when are bodies talk to us.<BR/>SLOW down and just learn to relax...and yes I have learned its ok to call up and have a pizza delivered for dinner when I am just exhausted.<BR/>Interesting that your DH had to learn as well your warning signs....thats WONDERFUL he is there to support you as well. Happy to see another finish by you...keep quilting!<BR/>congrats to Elaine.antique quilterhttps://www.blogger.com/profile/15379983489980682690noreply@blogger.comtag:blogger.com,1999:blog-13578815.post-60933668105907170532009-03-11T21:30:00.000+00:002009-03-11T21:30:00.000+00:00some of your symptoms sound a lot like the symptom...some of your symptoms sound a lot like the symptoms I have when I am in a really bad flare from my polymyositis. The muscle are so fatigue and weak that I can barely lift my arm above my head to dry my hair - that kind of fatigue. Or if you get down on the floor for something you are so weak you have to have someone help you up - is that the same for MS? I wonder how much the same the two diseases are? The best I can come up with is that you just rest, take your time, and if you can exercise very carefully by just steady slow walk, use an exercise band for very slow controlled moves for your arms to try to keep muscle tone. I am lucky have not had a very bad flare for 16 years at least, right now a mild flare that is more rash problems than weakness and fatigue.<BR/>Karen<BR/>http://karensquilting.com/blog/Karen - Quilts...etc.https://www.blogger.com/profile/07293429657903986492noreply@blogger.comtag:blogger.com,1999:blog-13578815.post-34190259101655779982009-03-11T20:56:00.000+00:002009-03-11T20:56:00.000+00:00Lucky lucky Elaine!!I LOVE the pink fabrics, sooo ...Lucky lucky Elaine!!<BR/><BR/>I LOVE the pink fabrics, sooo cute.<BR/><BR/>Take care of yourself. << HUG >>Helenhttps://www.blogger.com/profile/04931106196956511119noreply@blogger.com