Wednesday, May 26, 2010

World MS Day : National MS Society




I'm using today as a holiday...no cleaning or worrying about stuff that needs to be done (like fixing the fence out back or getting the cats to the vet for their shots due next week.) Today I am going to put some music on and rev up the sewing machine...who cares about finished I just want to see fabric flying!

Within my own quilting group here in Augusta there are two of us with MS and at least three who have family members with the disease. Online there are several of us who both quilt and manage the daily "aggravations and challenges" of being a fiber artist with a disease that tries to take away movement, vision, and energy....I've compared it to sitting down to quilt with the wrong prescription sunglasses on after running a summer marathon. But we do it (and many do it really, really well!)
So here is to the quilters with MS who keep on stitching and all those around them that helping them to keep the pieces together!

14 comments:

Victoria @ BUMBLE BEANS said...

Big huge hugs! Fabulous!

Teresa said...

You are an inspiration...I love your posts! I don't have MS, but deal with chronic disease that can leave me unable to sew or do other things from time to time. Have fun letting the fabric fly!

sewkalico said...

Have a fantastic flying fabric day my friend!

Diane said...

Stitch a few seams for me!

*karendianne. said...

What a beautiful post.

Cathi said...

I have read your blog for a while, but I think this is the first time I have commented. As a recently diagnosed (last February 2009) MS sufferer, I appreciate your post! I have been lucky so far to have minimal symptoms (numbness in my toes now, but which had been my whole leg when diagnosed...). I have an aunt who has had it for over 20 years and climbed Macchu Picchu last year, a real inspiration!

I managed to finish a Dear Jane and continue to make quilts and knit and keep up with two very busy little girls (5 and 7) so can't being doing too badly! I think we all learn to focus on what we still CAN DO rather than what we might not be able to do as well as before, it is the best way to face the challenges I think!

Thanks for continuing to inspire us all with your quilts!!

Ali Honey said...

I'm sending you a big hug! I think you do really well and are almost always cheerful. Long may that fabric fly. Go girl!

quiltmom said...

Sio,
I hope some day they will find a cure to help all my friends and loved ones who have to deal with the challenges of MS.
You do beautiful quilting and continue to explore your interests and passions with joy and zest.
Good luck with your course on evaluating antique quilts. I think it is fascinating.. I am sure you read Barbara Brackman's blog- Quilting and fabrics have their own amazing histories. Some of the tales that quilts can tell about their quiltmakers..
Regards,
Anna

許瑋美 said...

IS VERY GOOD..............................

Raewyn said...

Hope you had a great day sewing and taking care of yourself

AnnieO said...

Wow, I could hear that machine going from all the way out here! I'm glad you persevere with what you love, do what you can when you can, and try to change tack when things flare up.

I know MS is a complicated disease that is unpredictable even after years of having it. My aunt has it but has been stable for a number of years recently, though has had bad cycles in the past. She knits when she can. My SIL's sister is only 51 but has been wheelchair bound for the past year. She was diagnosed at about 28 years old. So difficult.

KimP said...

Thanks for posting this! MS quilters unite!

Hope you had a great day.

Loris said...

I'm late to the party but my prayers join yours for continued progress in healing for those dealing with this disease.I have a close friend facing the challenges.
I hope your sewing was great fun!

Lori said...

Very inspirational. Disease cannot stop the creative energy!